September is Craniofacial Acceptance Month

There hasn’t been many moments in my life where I’ve felt like turning around and giving a complete stranger a piece of my mind. But it happened once. In a checkout line of all places.

It was a while ago, Jarvis was sitting up in the seat of the trolley and I was facing him. He was smiling up at me and then began smiling at the people behind me, who when I glanced back were a mother and a pre-teen aged girl. Jarvis kept smiling at them and then I heard it. Muffled and whispered but it hit me like a a tonne of bricks. The mother says to her daughter “there is something wrong with that little boys face. Have a look.” Continue reading

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A week of firsts

Sometimes I wish writing was as easy as transferring your thoughts straight from your brain onto a computer via some sort of bluetooth device.

What I want to say sounds so good when I rehearse it in my mind, and then when I sit in front of the computer some days it’s hard to get anything resembling those thoughts out and onto the screen. And I do this for a living. Go figure. You’d think it gets easier with time, but sometimes it really doesn’t.

Hence, the more than a week between posts.

It’s been a big week, a great week – a real week of firsts … so forgive me as I attempt to summarise! Continue reading

This week I'm grateful for … answers

“I’m sorry that the news may not be what you were hoping for,” the neurologist’s voice trailed off as we moved towards ending our phone conversation.

It wasn’t until he said this that it even crossed my mind that I’d just received ‘bad news’. We had some answers, which was better than no answers. I had convinced myself that no answers was worst case scenario and any other news we could deal with. Continue reading